Update 13: February 27, 2007

On the Road Again

Our first week back on the road has been an exercise in learning how to live again in a space smaller than many people's kitchens. With Zane along, we also have a lot more stuff to contend with; not the least of which are all of the diapers and formula. The second half of the trip will certainly be more crowded than the first half was.

So far, everyone is adapting well. We've all been a little testy at times, but we're slowly getting back into the swing of being nomads again. We spent a few days in central Florida, near Ocala National Forest, enjoying the great weather and being outdoors again. We hiked every day we were there, and got in several bike rides on the nearby trails. Zane took the first three hikes of his life, sleeping peacefully in the comfort of a rebozo (think: baby sling) next to Susan. Justin is happy to be getting outside again.

Zane is doing okay, but maybe not as well as we'd like. He has almost completely given up on bottle feeding, and he has more frequent periods of labored breathing, which seem to cause him some discomfort. In the fast few days, his seizures have returned, and are greater in number and duration. Still, we have to remember that these are normal problems that Trisomy 18 babies encounter, and we deal with them the best we can. We continue to be grateful that Zane is able to join us and enjoy spending some time outdoors.

Next update...