Update 13: February 27, 2007
On the Road Again
Our first week back on the road has been an exercise in learning how
to live again in a space smaller than many people's kitchens.
With Zane along, we also have a lot more stuff to contend with; not the
of which are all of the diapers and formula. The second half of the trip
will certainly be more crowded than the first
So far, everyone is adapting well. We've all been a little testy at
times, but we're slowly getting back into the swing of being nomads again.
We spent a few days in central Florida, near Ocala National Forest, enjoying
the great weather and being outdoors again. We hiked every
we were there, and got in several bike rides on the nearby trails. Zane
took the first three hikes of his life, sleeping peacefully in the
comfort of a rebozo (think: baby sling) next to Susan. Justin is happy
to be getting outside again.
Zane is doing okay, but maybe not as well as we'd like. He has almost
completely given up on bottle feeding, and he has more frequent periods
of labored breathing, which seem to cause him some discomfort. In the
fast few days, his seizures have returned, and are greater in number
and duration. Still, we have to remember that these are normal problems
that Trisomy 18 babies encounter, and we deal with them the best we
can. We continue to be grateful that Zane is able to join us and enjoy
some time outdoors.