Update 22: January 1, 2021
Zane passed away on January 8, 2020. This is from his obituary:
Zane passed away at the Ryan House in Phoenix on January 8, 2020 after an amazing 13-year life. Zane was born in Fort Myers, Florida on December 22, 2006, in the middle of a 15-month road trip with his parents Jeff and Susan, and his older brother Justin. The theme of the road trip was visiting all of the National Parks in lower 48, which he accomplished both in utero and after he was born.
Zane lived with Trisomy 18, which along with other diagnoses, brought many challenges and limitations. His parents were told he would die within a few months. But being the positive and energetic spirit he was, he proved the doctors wrong by living for another 13 years.
Spending time with his family made Zane very happy. He traveled, camped, hiked, swam, and even skied with the family. During these activities, and even though he could not speak, he was able to communicate his complete joy in being outside and included in what everyone else was doing.
He had an amazing spirit that lifted everyone around him. His family takes solace in knowing he is someone who knew no hate, no prejudice, and loved everyone unconditionally.